.
.
.
.
.
.
My mom now communicates with me by gripping my hand. One grip for yes, two for no. Yesterday a doctor came in to tell us she wasn’t responsive, and her grips were random – that her mind wasn’t really working, so I said “Mom hold up two fingers.” And she did. Then I said “Mom what’s two plus two?” And she held up four fingers. I could tell she enjoyed showing the doctor he was moron. I’m actually surprised she didn’t give him one particular finger!
She plays with a cord leading to the heart monitor. The nurse says she’s just bored, and has nothing to do but play with the cord. My Mom is a busy lady, always doing something. The boredom of lying in a bed with a tube down your throat, with nothing to do but play with a cord must be horrible. I wish I could find a way for her to pass all this waiting time more easily. Another nurse comes in, this one in a bright red Hawaiian shirt, and I try to figure out what’s up with the uniform code here? The new nurse is the respiratory specialist. There are more specialists here coming in and out on a regular basis than I can count. Respiratory, pulmonary, physical therapy, circulatory, neurology, lab technicians, and the guy who takes care of the machine that goes “bing.”
Looking at her in that bed, it’s hard to imagine that just a week ago she was perfectly alright, talking to me on the phone, giving me far too many details about a subject I can’t even remember. I was trying to work on the Unwind script, and I remember politely asking her to get to the point. And now we don’t even know if she’ll be able to speak after the stroke. How often do we take for granted the conversations we have with the people we love? What I would give now to hear her talk about anything for as long as she wanted to.
The care here seems to be very good, but to a layman it’s like being at the mechanic’s. “We need your consent to introduce a picc-line because the venal approaches are not as clear as the arterial blood-gas line, and she may need a new carburetor.”
.
.
.
.
.
.
By now, though, my dad and I are beginning to feel like experts in, at least the specifics of treatment for stroke victims. (The medication she was on, by the way, when she was in the induced coma, was propyphol – the same stuff that killed Michael Jackson. It’s powerful and dangerous stuff if not monitored 24/7 by professionals in a structured hospital setting. Conrad Murray should rot in jail.)
I hold my Mom’s hand now. I can tell she’s glad my Dad and I are here. She’s also frustrated, as we all are, that the pulmonologist won’t take out the breathing tube yet. Today we were told she’s developed pneumonia. From the breathing tube. Yet they can’t take it out, because she has pneumonia. It’s maddening.
It’s very difficult to be patient when you can’t be sure what the next moment is going to bring. When you’re not sure if the alarm going off is just a lose connection, or cardiac arrest. When you have to unplug your hard-line phone and turn off your cell at night, because you can’t sleep due to your terror of the “middle-of-the-night call” from the hospital.
Right now every day seems to be two steps forward, one step back, but all we can do is hope and pray that those forward steps will all begin to add up to recovery – and that when Thanksgiving rolls along, we will have something to be truly thankful for.




















